Showing posts with label Michigan. Show all posts
Showing posts with label Michigan. Show all posts

Sunday, October 11, 2009

BORROWED MAGIC


Life sucks for most everyone right now. Time to reflect inward ... I'm working on my story, one chapter at a time. It's the tale of a little bastard who is raised Jehovah's Witness by her mother, grandmother and great-grandmother. This is the version I'll be reading at my writers meetup group Tuesday night. It's all true and the names and places are real.


BORROWED MAGIC

We were born in 1950, a few months and five houses apart.

Karen Spurgeon lived at one end of Wellington; St. Leonard’s Catholic Church and convent were at the other. After all the whispered rumors of pregnant nuns and buried babies, the place creeped me out.

The Spurgeon children went to school there.

Karen was the oldest of five rambunctious kids. She had orange curly hair, big round freckles and a great sense of adventure. Next in age was Little Stevie, stick thin and only moderately vexing. We let him play with us … sometimes.

Back then children didn’t knock or ring doorbells - we called each other out in extended syllables. When Karen came to my grandmother’s little white house, she envied my quiet and privacy. When I went to her house, I envied the noise, fish stick Fridays and brownies that came out of boxes.

Food became a big part of our relationship and we grew out as much as up. Her youngest sister Theresa the Climber had chronic sinus problems. To my horror, “Micki” always sounded like “Piggy”.

Karen’s mother Janet didn’t eat - she smoked. She looked like the Marlboro Man - tough and wiry without T or A. Karen’s father Jim was large man with five o-clock shadow. I was afraid of him because I’d heard he drank real blood while studying for the priesthood.

The whole concept of fathers was sort of lost on me anyway. Mine left when I was seven and never came back. I didn’t have holidays either. I remember sitting in the living room with the lights out as groups of costumed children laughed their way past my house on Halloween.

Karen always shared her take with me.

Each winter her father spent hours building the perfect rink in the back yard. He laid the hose and nozzle within the branches of a leafless tree, directing a fine mist that created ice as smooth as glass.

Skating on that perfect rink was pure magic.

Her family had the great sparkling Christmases you see in movies. They even had TV. Watching Disney and the Jetsons was something special. If it was late when I left, Karen walked me halfway home. That was a big deal, even though there was less to fear back then. We’d walk exactly 2 ½ houses and run the rest of the way alone in the darkness.

As we entered our teens, my religion closed in as Karen broke loose. Her parochial plaid skirts got shorter as her hair got bigger. The last time we talked as kids she was walking home from school with an armful of books. A June bug flew to certain death in her rat’s nest and she shook her head violently in an attempt to dislodge the buzzing insect.

That day the nuns had dragged her to the john to wash her face and brush her hair. She hated school.

I never saw her again. Well, for 30 years, anyway. That’s when I saw the obituary. Janet was dead.

By then my Gram was growing old alone in her little white house and I was visiting every week. The funeral would take place at St. Leonard’s.

I told Gram we should go. She agreed.

We walked from the sunshine of the parking lot into the darkness of a chapel lit only by candles. The Spurgeons had attended that church all of their lives, so I expected the pews would be full; they weren’t.

As we walked down the aisle to Janet's coffin, a tall thin man with a beard walked up with shocking enthusiasm. He called me by name. Little Stevie remembered my Gram too. "Hello Ethel!!"

He walked us up to the coffin and softly explained that his mother had died of lung cancer. My Gram said that was a shame and he said "it’s ok - she's in a better place."

Gram blurted out "what do you mean 'in a better place' - SHE'S DEAD!"

I was mortified. It always amazes me when people who have been religious all their lives become fearful towards the end.

I don’t remember much about the actual service except for the darkness and the sudden problem I had with my vision. There was a full spectrum of color around each of the candles. I blinked hard and rubbed, but the colors remained.

After the service, Karen and Stevie invited me to the wake. I dropped Gram off and drove out. We spent hours catching up. Karen was an RN, Stevie was passionate about doing civil war reenactments.

They told me their mother had smoked all her life and only managed to quit one month before her death. We all agreed she might as well have kept on smoking.

They said “well, at least our parents are together now.”

Karen explained that her father had died some years earlier. She said his spirituality had intensified with age and he saw death as "the next great adventure."

He promised when he got to the other side, he would send rainbows.

That was the last time I saw Karen and Stevie. But the memory of the rainbows will last as long as I live.

Maybe longer.

Thursday, August 20, 2009

Lyme Disease Update & Rant


This photo reminds me of Lyme Disease.

For some of us it's more than debilitating illness - it's crushing confusion too. I remember showering and forgetting what I'd washed. Many times I was too weak to dry my hair; I went back to bed in towels.

Finally I got so sick and confused I went days without showering at all. (My ex-bf is a saint for taking care of me through all this.)

Lately there is heightened awareness of Lyme Disease.

All I can say is ABOUT DAMNED TIME.

When I first got sick I went to Michigan's DNR site to see if it was possible I had Lyme. According to that site, there was no chance. It did not exist in that area.

If the site had been accurate, I would have pursued correct treatment years earlier. But no, it took strange circumstances after two years of personal hell.

After I was finally diagnosed, a friend who works for a pharmacist asked him about it. He said Lyme was "deliberately under-reported because the state doesn't want to damage the tourism industry."

The DNR has since changed the website. Too little, too late. The undiagnosed Lyme turned my life upside down and I lost EVERYTHING.

An online Chronic Fatigue support group saved my life by leading me to diagnosis. I'm surprised they still remember me ... today I got an email.

"Hey there,

I have been having a weird symptom for about a month now and the CFS group thought you might know. I have been having this weird tingling in my back frm my shoulder blades down to the lower part of my back. It is a feeling like when your arm is asleep and is beginning to wake up. It is a numbness and tingling kind of feeling.

It is not painful, just annoying at times..........................It goes on for hours, and I wondered if you had any of these symptoms with the Lyme,,,,,,,,,,,,,,,,,,,,,,,,,,,,,,"

I'm putting my response here in case anyone reading knows someone who's living with Lyme or similar illnesses.

"Hi Susan

There was one day when I forced myself to drive somewhere and I started losing feeling in the fingers of both hands. The numbness started crawling slowly from my hands to my elbows ... it was surreal. I drove straight to ER and they wrote it off as stress. (I thought I was having a stroke.)

That same week my shrink said my face was crooked, like I had Bell's Palsy. Someone in the group - Matt I think - saved my life by saying YOU HAVE LYME DISEASE. FIGURE OUT HOW YOU GOT IT.*

I'm doing great down here, my health is fine. I can't handle cold weather AT ALL. If we have a cold night I nearly cripple up.

You can forward this to the group if you like. In fact I wish you would. If anyone wants to talk they're welcome to write.

Part of what got me well was using my anger constructively. I made some changes:

I threw out all my meds. (I was furious that nothing was working - and actually felt a little better within a few weeks. This is me, it's not for everyone, but my undies are still in a bunch about pill pushing doctors.) Now I take vitamins and ... it just occurred to me, I never even get headaches any more. Maybe that's because of everything else I'm doing.

I moved to cleaner air and warmer temperatures. Not everyone can do that but it's part of what saved my life.

I treat my body like a temple - healthy fruits and veggies from a local farmer's stand and ZERO fast food. My diet is mostly vegetarian with eggs and dairy. Sometimes I slip and have fish or poultry. (I can buy fresh fish and shrimp from a fisherman around the corner ... so I know there is zero processing.)

Yoga has made an enormous change. ENORMOUS. It has been about a year I think. One of my friends from class said "I remember those first few times you came; I didn't expect you to last one full class." I could hear my joints grind. But I stuck to it.

The most important thing is find the right teacher. Mine is very gentle, asks what your issues are and makes accommodation for weaknesses.

Now I'm a 58 year old physically functioning at 35 year old levels in class.

I enhance the yoga with walking or bike riding. (Get outside, get sunlight.)

This is almost the best health I've been in in my life. The most flexible, the most active.

If I knew back then what I know now, I would have done the IV antibiotics and taken greater care with everything that went into my mouth, from liquids to solids; garbage in, garbage out. Food can harm or heal. I remember the depressions, the "comfort food" - or sometimes eating nearly nothing and still gaining weight. When we're sick our metabolisms go to hell.

And I would sign up for a gentle yoga class with an understanding teacher. I have gone from someone whose joints creaked getting out of the chair - someone who was so weak I can remember my feet literally flopping over and dragging on the worst days - someone who fell down the stairs about three times - to someone who can just about wrap her ankle around her neck.

Imagine ... go to a studio and find the right teacher. I can't stress that enough. There is even chair yoga for those of us who got totally rusted out from illness.

MOVE. Even (especially) if you don't want to. Sit and die or move and live.

I practice Iyengar yoga. It uses props for people with weaknesses, injuries and other limitations.http://en.wikipedia.org/wiki/Iyengar_Yoga

Sorry, I know that's too much but I hope you'll send it to the group. I almost have survivor's guilt, I remember how much it sucked to live that way and I never want to be in that position again!!!"

Susan - I suspect a few of the yoga positions we do would relieve that back weirdness. One of the first things we do in class is lie down on the floor on our backs and pull our knees into our chests - then rock back and forth. It relaxes the spine. We also do back stretches over bolsters that are incredibly relaxing/healing.

We don't walk out of class ... we pretty much float.

(End of email.)

*
How I got Lyme? I was sitting in my ex-boyfriend's family room watching Sex and the City. He was on 5 acres with deer. My Bouvier ... who was lying at my feet ... liked to go out back and chase them.

Apparently the deer tick crawled off her, onto the recliner and into me. I felt my flesh move, clawed "the thing" out with my nails and it was full of my blood.

I had no idea it was a tick.
I got sick a few months later. During the two years of crushing illness, not knowing what I had - my mother started talking funeral arrangements.

Lyme Disease is that damned bad.

If you know anyone who has strange symptoms, please have them investigate Lyme Disease.

I've been blessed to be able to help bring a few others to diagnosis and treatment. In my case the IV antibiotics helped mentally, but I'd had it too long. It took a move to a warmer climate combined with the afore-mentioned lifestyle changes to turn my health around.

My long illness inspired my book:

Sick Mick's Guide to Selling Antiques & Collectibles

Staying busy mentally - or at least trying to - kept me from drowning in despair.
http://www.amazon.com/gp/product/0978739302/ref=s9_simz_gw_s8_p14_i1?pf_rd_m=ATVPDKIKX0DER&pf_rd_s=center-2&pf_rd_r=1Z0P54T7QNPJB2KB8VQ8&pf_rd_t=101&pf_rd_p=470938631&pf_rd_i=507846






Monday, March 3, 2008

Intuition, Recurring Dreams & Warnings from Mom

Yesterday was spiritually weird.

I have a recurring dream about falling into a canal. Not a river, not a canal like between houses ... more like the channel I physically found myself boating ON yesterday. Residences in the distance, utter wilds with mangroves on the other side.

Deepish water with tides and currents.

The BF wanted to go out fishing and there was quite a chop on the river. Get out to the bigger water and you're talking true danger, especially if he starts drinking.

The life jackets and cushions are in the v-berth, just a few feet away; but in boater-world, life jackets are for pussies.

I said I didn't want to go beyond the river and he got pissed off, said he'd take me home. I said "ok." (Yeah, take me back!)

I had a really bad vibe. And I told him so, let him think I'm a freak. He complains, but I think he respects my intuition.

So we take off up this channel. It was pretty gorgeous, but these dreams. This "new" channel is like the one I keep seeing in my dreams.

In the first one I am "dropped" into the water and I keep falling into the deep green seaweed and I am afraid for my life because of sharks.

In the second one, I don't remember the details - I'm not as afraid.

And in the third one (last week) I find myself in it with a lot of vegetation floating on the surface. I dive below and it's clear and light and beautiful. The water is pale blue and warm and the vegetation floats above like clouds. It's heavenly.

I think it feels like death.

And I rise to the surface and see a woman, also in the water. Her mouth is wide open with terror. I tell her "dive - don't be afraid. It's beautiful."

Anyway, the dream has me a little freaked. I wonder if my Gram is warning me from the other side. Or inviting me.

I told the BF I'm not afraid of death but I don't want to go right now.

The day turned out terrific, didn't really catch any fish but a school of Redfish (?) flashed under the boat like flying saucers; they were sideways as they passed in the current, their bellies flashing silver - and next came a huge blue-gray dolphin after them. He slowly rose to the surface and blew. I was just in awe. It was one of those priceless moments. And there were more dolphins as the day passed.

When we got back to the house I called my mom who lives in Michigan's Upper Peninsula. They've got deep snow, eagles, wolves and the occasional black bear. (Their biggest REAL dangers are in their pantry - her homemade pies and cakes are to die for.)

She worries about me.

I got a lecture on snakes. Am I careful where I walk? I stay on the sidewalk mom. I'm talking to the woman who has snakes in the cash register in her antique shop. They hang out with the electrical wires because they're warm. (I'm not making this up.)

Well, what about the spiders. She must have some unique satellite station up there on the dangers of SW Florida. Told me to check my shoes before putting them on and I said "they're thongs - if there's anything in 'em, I'll see it."

Thongs are an alien concept up in Yooperland. I remember her once mumbling something about "we never see peoples' feet here."

Whereas I am living my dream life ... except for the occasional Reebocks, I don't go a day without sandals.